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I still miss you Dad! people are taken away from us but memories live forever, our Brent still talks about you I wish you
were her to see our Amie
Motor neurone disease is powerless
It cannot cripple love
it cannot shatter hope
it cannot corrode faith
it cannot eat away peace
it cannot distroy confidence
it cannot kill friendship
it cannot shut out memories
it cannot silence courage
it cannot invade the soul
This is the home page of my dad Glen howells who, like his sister, has motor neurone disease aka als or lou gerigs disease.
i have made this for you dad.
Motor Neurone Disease [MND] is the name given to a group of diseases in which the nerve cells [neurones] The nerve cells
that operate the voluntary muscles known as motor neurons, begin to sicken and die. The muscles atrophy, that is, they
waste away.
It will affect ALL voluntary muscles including speech, respiratory, swallowing and even eye movement.
The mind remains unaffected as do the five senses. They are keenly aware of everything that is happening to them and
their families.
There are two types of onset, limb or bulbar. Although limb onset is more prevalent in those diagnosed with MND, bulbar
onset is displayed in speech, breathing and swallowing symptoms. The bulbar onset often progresses faster.
Symptoms in three motor neuron regions must be displayed before an MND diagnosis can be made, and other disorders eliminated.
There is no marker in order to make an exact diagnosis. For this reason, many difficult and often painful tests must be performed
to eliminate other possibilities, for which there may be a cure.
There is a familial form of ALS, known as fALS, which runs in families. Approximately 10% of those with ALS have the
familial form. However, there is a 50/50 chance of all children born to an fALS patient to also carry the disease. The other
90% of ALS patients are considered sporadic MND.
A very small percentage, less than 5%, may display dementia along with their MND symptoms.People suffering from MND
has described it as being
"buried alive".
You are locked inside an hour glass; the grains of sand slowly engulfing you.
You are unable to move your feet, your legs. Time continues to pass and the granules continue to fall. You find yourself
unable to move your hands, your arms; you scream for this cascade to stop, but it doesn't stop.
The weight of the sandy avalanche presses against your chest, crushing your lungs; your screams become more desperate,
more difficult to hear. And still the dune continues to rise. It covers your mouth, so now, not even a word can be uttered,
a thirst quenched, your breaths so very shallow. You wake up.
If you have MND, you woke up only to find the nightmare didn't end. You live this nightmare everyday. Your loved ones
trapped outside the vessel unable to rescue you from this ordeal.
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